"I love Adam Hrdy - CMD - Merosin deficitni kongenitalni dystrofie"

2022-07-07 08:57:03

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--bg-position:fixed;--bg-overlay-color:rgb(var(--color_18));--bg-gradient:none;--fill-layer-image-opacity:1;--fill-layer-background-overlay-color:transparent;--fill-layer-background-overlay-position:absolute } AdámekHrdýÚvodO AdamoviNapsali o AdámkoviDiagnózaČlánek o dystrofiiRehabilitaceUžívané produktyGalerie201320142015201620172018VideaMédiaJak pomoci?SponzořiOdkazyKontaktMoreUse tab to navigate through the menu items.Podpoříte mě?Koupí řasenky přispějete!press to zoomSíla rodiny, z.s.Oficiální stránky zapsaného spolku připravujemepress to zoompress to zoomPodpoříte mě?Koupí řasenky přispějete!press to zoom1/15Vítejte na stránkách Adámka HrdéhoJmenuji se Adam Hrdý a narodil jsem se 19.8.2013 v Thomayerově nemocnici v Krči jako naprosto zdravé miminko s váhou 3650g a mírou 50cm.Ve 13 měsících mi bylo diagnostikováno vzácnégenetické onemocnění Merosin deficitní kongenitální svalovou dystrofie. Tyto stránky byly založeny mými rodiči, abychom se s Vámi mohli podělit o zkušenosti, informace a mé úspěchy v boji s touto diagnózou.​Pokud nám chcete finančně pomoci, budeme vděčni za jakoukoli částku. Všem dárcům předem velice děkujeme. Číslo Adámkova transparentního účtu je 2901254365/2010Krása je nadějeKoupí řasenky přispějete Adámkovi na léčbu a rehabilitacepress to zoomAdámkova stránka je provozována zapsaným spolkem Síla rodinypress to zoomSíla rodiny, z.s.Oficiální stránky zapsaného spolku připravujemepress to zoomKrása je nadějeKoupí řasenky přispějete Adámkovi na léčbu a rehabilitacepress to zoom1/3Podpoříte mě?www.silarodiny.czwww.pomocpohybem.cz© 2017 Adamek Hrdy