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Rare Cancers Europe | Rare Cancers Europe
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Rare Cancers Europe (RCE) is a multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda.
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Rare Cancers Europe | Rare Cancers Europe
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2022-06-29 21:11:49

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2022-06-29 21:11:49

Oops, you're using an old version of your browser so some of the features on this page may not be displaying properly.MINIMAL Requirements: Google Chrome 24+, Mozilla Firefox 20+, Internet Explorer 11, Opera 15–18, Apple Safari 7, SeaMonkey 2.15-2.23 About Rare Cancers Europe Our Mission Our Governance RCE Goals & Task Forces Improving the methodology of clinical studies and regulatory practices in rare cancers Improving the organisation of healthcare in rare cancers Improving access to rare cancer treatments and standard of care Improving the education of healthcare professional and information on rare cancers Our Partners Our Corporate Partners Contact us What are rare cancers? Definition of Rare Cancers "Families" and List of Rare Cancers Specific Challenges of Rare Cancers Rare Cancers in Europe Rare Cancer Agenda 2030 RCE’s Involvement in EU Policy RCE’s Responses to EU Public Consultations Rare Cancers Europe’s Call to Action on “Rare Cancers in All Policies” European Reference Networks RCE & JARC About the Rare Cancer Treatment Portal News Events Rare Cancers Asia Login 58K Rare Cancers Europe Joining forces in action About Rare Cancers Europe Rare Cancers Europe (RCE), 39 partner strong multi-stakeholder partnership, founded in 2008 and coordinated by the European Society for Medical Oncology (ESMO), brings together scientific societies, patient and research organizations, healthcare and education providers, and the industry. Read More What are rare cancers? 21 Jun 2021 Rare Cancers are not so rare. They are more common than you think.24% of all new cancer diagnoses, including all paediatric cancers, are rare forms of the disease. With 650,000 new rare cancer diagnoses annually and around 5.1 million people in the EU living with a rare cancer, rare cancers are not so rare. Read more Rare Cancers in Europe 8 Sep 2021 Despite the EU’s many achievements, the very nature of rare cancers adds a layer of complexity to overcoming the challenges they pose to patients, the researchers and the healthcare professionals who research and treat them. Thus, all policies at the EU level should to take into account the specificities of rare cancers to provide the best possible care to all patients. Read more RCE News 09 Jun 2022 Our New Steering Committee Rare Cancers Europe is delighted to announce the election of its new Steering Committee.  17 May 2022 RCE Speaks at the International Conference on the Revision of EU Legislation for OMPs and Pediatrics Organised by the Czech Parliament 28 Jul 2021 Rare Cancers Europe is a finalist for a Thematic Network under the EU Health Policy Platform of the European Commission 13 Jul 2021 Rare Cancers Europe is a semi-finalist for a Thematic Network under the EU Health Policy Platform of the European Commission Access the full list of news RCE Webinar RCE Webinar Rare Cancers in All Policies - A Rare Cancers Europe Call to Action 22 Sep 2021 The webinar brought together speakers from EU institutions, European Reference Networks, scientific societies, patient organisations, industry and other crucial stakeholders to discuss the challenges the community is facing and potential solutions. Read more here About the Joint Action Against Rare Cancers Read more About the Rare Cancers Treatment Portal Read more RCE Events 8 Feb 2022 Virtual, RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2022 Online Training 28 Sep 2021 Virtual, Rare Cancers Europe Webinar on “Rare Cancers in All Policies” 14 Jan 2021 Virtual, RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2021 Online Training 29 Nov 2019 Milan, Italy RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2019 1 Dec 2018 Milan, Italy RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2018 5 Feb 2018 Switzerland University Post-Graduate Course - Clinical Oncology: Head & Neck Cancers 22 Jan 2018 Milan, Italy University Post-Graduate Course - Clinical Oncology: Sarcomas 2 Dec 2017 Milan, Italy ESO-ESMO-RCE Clinical Update on Rare Adult Solid Cancers 2017 2 Dec 2017 Milan, Italy RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2017 25 Sep 2015 Vienna, Austria ECC 2015: Rare Cancer Activities & Highlights 26 Sep 2014 Madrid, Spain RCE at ESMO 2014 10 Feb 2014 Brussels, Belgium Rare Cancers Consensus Meeting: Pathology in Rare Cancers Discover all RCE Events 08 Sep 2021 Rare Cancers Asia Rare Cancers Asia (RCA) is as a multi-stakeholder partnership, including all groups with an interest in improving the lives of rare cancer patients in the Asia-Pacific Region. Read more © Rare Cancers Europe 2021. All rights reserved.We welcome requests for permission to reprint or translate the information on this website, including the Call to Action Against Rare Cancers, for non-commercial use. However, the content, layout and logo of the website may not be copied without attribution to the campaign, and no modifications of the content, layout or logo are permitted. The cooperating organisations behind this campaign have made every effort to provide accurate information on this website. However, the cooperating organisations and corporate supporters accept no liability for any inaccuracies or omissions, nor can they accept liability for any loss or damage resulting from any inaccuracy in this information or third party information such as details on websites to which we link. The information contained on this website is for educational purposes only. For individual medical care and advice about specific conditions, please contact a doctor. 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