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2022-06-19 00:44:39

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2022-06-19 00:44:39

HomeTimelineReadWatchListenBuy my BookSelect Page Hello, I’mJAY VERSLUISI’m a super survivor Tell me more  I’ve been invited to give a talk about my case by the wonderful people of NCODA, Nova Southeastern University Chapter. The original plan was to do this in an auditorium, but with the world being what it is, we’ve made it a Zoom meeting – and you’re all invited to watch. Join me in chat on Saturday, October 1st, 12pm EST Watch on YouTube Never give up I have spent three years going through cancer treatment hell and have survived against all odds, thanks to a new treatment approach called immunotherapy.I haven’t shared much of my journey as it was happening between 2015 and 2017, but now that it’s all over, I have an amazing story to tell. kLynch SyndromeMy type of cancer is genetic. It’s caused by mutations that impair DNA Mismatch Repair (MMR). This condition is also known as Hereditary Nonpolyposis Colorectal Cancer. KRAS MutationMy cancer also has had a KRAS mutation. This condition makes it much more aggresive than “regular” cancers, and as such renders it almost immune to conventional treatments. gSuper SurvivorI’m a cancer survivor for whom conventional treatment didn’t work. But an immunoherapy drug called Keytruda (Pembrolizumab) did the trick. Catheter TalesI’ve had the pleasure of wearing every type of catheter there is. Check out my tips on how to live with them. Stoma Tips & TricksI’ve had both a colostomy and an ileostomy for nearly two years. Here are some tips on living with those things. Life on TPNI’ve used various types of Total Parenteral Nutrition instead of solid food for nearly a year. Let me tell you about my experiences with it. Quick Facts and Timeline Surgeries Chemotherapy Infusions Immunotherapy Infusions Radiation Treatments Read my BookI’ve written a book about my whole cancer journey. It’s called BROKEN BOWELS – Tales of a Super Survivor.You can get it as Paperback and Kindle Edition from Amazon.I’ve narrated the whole book for iTunes and Audible (it’s nearly 16 hours long). Grab a sample while you’re here. Read and Listen Here My Video DiaryAs a continuation of my book, I’m doing regular updates on my wellbeing and the many inspirational events that are happening in my life after cancer. I talk about the moments I enjoy, the people I meet, and make notes of things I don’t want to forget.Follow me on YouTube for the latest updates and premieres, or watch right here on this site. Watch Now My Audio PodcastDon’t have time to watch my Video Diary? Fret not, I’ve turned my commentary videos into audio files for y’all. You can listen right here on this site, on Spotify and iTunes, or subscribe with your favourite Podcast Client. Subscribe Here Presidential TreatmentI was treated with the same immunotherapy drug that cured President Jimmy Carter. It seems to have worked wonders for the both of us! visit keytruda.com What’s been happening recently Bottom Right Molar Storyby Jay Versluis | May 23, 2022The week before my 50th birthday I had some weird tooth issues I thought I'd make a note about. It's great having a place to do this on actually, as it build a timeline of how things are going with my body. It started after I ate some of those small carrots as a snack... Weird Abdominal Painsby Jay Versluis | Oct 26, 2021I forgot to mention some weird abdominal pain I've had last week, I've had this before so it felt vaguely familiar. It must have been last week, perhaps Wednesday or so. I started to feel a numb pain from below my rib cage to about just under my belly button. I... My Talk at the Oncology Symposium 2021by Jay Versluis | Oct 3, 2021https://youtu.be/IOeAExWaCg4 Here's a little presentation I have at the 3rd Annual Oncology Symposium. It's been postponed a few times and finally happened on the 2nd of October at Margaritaville in Hollywood. It was fun to be back and talk about my case, and see so... The 90 Day Supplyby Jay Versluis | Mar 21, 2021I've just had my 6 month check-in with my oncologist Dr. Cusnir. Like all hospital personnel, he's wearing a mask and scrubs. Last time we met it must have been 9 months ago or so, in between which I had a remote consultation with Karen, so there were no masks... Second Ocular Migraine Incidentby Jay Versluis | Dec 7, 2020About a month ago I wrote that I had something called kaleidoscopic vision, also known as an ocular migraine. It literally came and went without any repercussions or actual pain. It was just a weird experience, and it had me worried because I've never experienced it,... Kaleidoscopic Vision Experienceby Jay Versluis | Nov 11, 2020I've just had an interesting experience while watching TV (The Mentalist, season 1, episode 2). It's something that appears to have been Kaleidiscopic Vision. Here's how I've described it to Julia, trying to work out how this thing came about: my peripheral vision was... Read More Posts My other projects This is more of a long-term observational diary. I write regularly about software, technology and 3D development on these other sites: versluis.comThe WP Guru FacebookTwitterRSSDesigned by Elegant Themes | Powered by WordPress